
GeneWatch
Volume
14 Number 4 July 2001
Human Germline Engineering and Cloning as Women's
Issues By Marcy Darnovsky
Editorial: Choice in the Biotechnology
Age By Suzanne Theberge
There You Go Again, Monsanto! Commentary by
Martin Teitel
On Order Commentary by
Barbara Katz Rothman
Childbearing in the Age of Biotechnology By
Ruth Hubbard
The Co-Opting of Women's
Choices By Abby Lippman
The Safe Seed Pledge: A Move Towards Food
Protection By Amber Beland
Interns Making A Difference at CRG
Announcement: Adrienne Asch Joins CRG
Board
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Human
Germline Manipuation and Cloning as Women's Issues
by
Marcy Darnovsky
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While the prospect of genetically "redesigned"
people challenges humanity as a whole, it particularly threatens groups
that historically have been disempowered. And because human germline
engineering and cloning are so closely tied to reproduction, they are of
special concern to women.
The New Eugenics and the
Commercialization of Reproduction
Already, prenatal screening
and preimplantation diagnosis make it possible to eliminate fetuses and
embryos with a number of identifiable genetic conditions. As disability
rights activists point out, these developments put women in the position
of "eugenic gatekeepers." Inheritable genetic modification, to whatever
extent it turns out to be technically possible, would amplify the powers
of eugenic selection many times over.
If a new "free-market
eugenics" were to take hold, who would actually exercise "consumer
preference" for genetic "enhancements?" Who would decide what was on
offer?
Human cloning and germline engineering would move decisions
about reproduction further away from women, not only toward doctors and
technicians but also toward marketers proffering the "enhancements"
developed by biotech companies. Women could find themselves simultaneously
losing ever more control of their own childbearing experiences, and
subject to vastly increased pressures to produce the "perfect
baby."
Writing in Time magazine, Lee Silver spins a scenario
set in the year 2024, in which a fertility clinic advertises for "Organic
Enhancement" on "web sites frequented by women with baby-making on their
minds." "Why not give your child the best possible start in life?”
Silver's hypothetical ad campaign asks. But
"Keep in mind, you must
act before you get pregnant. Don't be sorry after she's born. This
really is a once-in-lifetime opportunity for your
child-to-be."
The technologies of human genetic manipulation would
exacerbate existing trends toward "reproduction for profit." Already,
nearly all developments in genetic science take place under corporate
auspices. Researchers work either for biotechnology companies or in
university laboratories with significant personal, departmental, or
institutional financial stakes in the success of commercial biotech
enterprises.
The Commodification and Geneticization of
Children
Advocates of human genetic manipulation have projected
vivid scenes of a not-too-distant future in which parents contemplate the
"enhancements" they'll select for their children. But their imagined
futures are vague about the lives of the children who might be born after
such procedures. And they have not speculated at all about "unenhanced"
children in a society in which human germline engineering becomes normal
for certain classes.
One such advocate, University of Alabama
philosophy professor Gregory Pence, asks, "Would it be so terrible to
allow parents to at least aim for a certain type, in the same way that
great breeders...try to match a breed of dog to the needs of a
family?"
Talk of "breeding" children strikes most people as
repugnant in part because the notion of creating a pre-selected type of
child to meet "the needs of a family" suggests that the child might be
valued for fulfilling his or her assigned function, or for possessing
certain characteristics, and only for those reasons. Genetically
engineered children would, in fact, be designed to specifications chosen
and paid for by parents, from among those on offer by genetic
technicians.
While unreasonable and unfulfilled parental
expectations can certainly flourish in the absence of genetic
modification, expectations grounded in technical claims and expensive
procedures would likely be far more pronounced. However subtly, the
prospect--or the illusion--of selecting certain traits could make parents
less likely to understand their children as emerging autonomous beings who
develop in continuous interaction with their physical and social
environments.
How might a "designed child" experience herself?
Perhaps she would feel constrained by her real or imagined genetic
capabilities and propensities, and surrender her "open future" to a
mistaken conviction that her destiny lay in her genes.
Actually,
not only are we unable to foresee the physical consequences of
manipulating the genetic material of an early human embryo, but also we
have no way to reliably predict the emotional or psychological effects of
germline engineering or cloning on children or
families.
Human Genetic Manipulation and the Politics of
Abortion
In their efforts to make the idea of designer babies
and human clones publicly acceptable, many advocates have adopted the
language of reproductive choice. They have begun to argue explicitly that
support for human genetic manipulation--or at least, refusing to condemn
those who may want to practice it--is a "pro-choice" position. A recently
published pro-germline engineering book, for example, is titled From
Chance to Choice (by Allen Buchanan, et al, Cambridge University
Press, 2000).
This use of pro-choice language is likely to foster
confusion between the unprecedented and unjustifiable practice of
"enhancing" the genetic makeup of a future child, and women’s fundamental
right to end an unwanted pregnancy. It will take focused effort to make it
clear that altering the genes of one's children is not among the
reproductive rights for which so many women and women's organizations have
struggled.
The situation is further muddied because opponents of
abortion have been vocal critics of human germline engineering and
cloning. Their concerns about "playing God," and their opposition to the
destruction of human embryos that these technologies would entail, are
often the only arguments against designer babies and human clones that are
heard.
In fact, the U.S. legislative and policy debates over human
germline engineering and cloning have so far taken place almost completely
within the framework of abortion politics. Opposition has been voiced
mostly by abortion opponents; pro-choice forces have for the most part not
yet engaged with these issues. Advocates of women's health and choice will
need to develop a voice for women's reproductive rights that is firmly
pro-choice and firmly opposed to the genetic modification of human
beings.
Lisa Handwerker of the National Women's Health Network
points out that although supporters of human genetic manipulation and
opponents of abortion typically conflict, they share a tendency to focus
their attention on embryos, and to sideline both pregnant women and the
children whom women bear and raise. Anti-abortion activists often depict
human embryos as independent entities completely separate from the woman
in whose womb they are nurtured. Similarly, discussions of genetically
modified children center on the early-stage embryo and the "improved"
future that scientists can give it.
Banning Human Genetic Manipulation: The Tasks
Ahead
In the United States, where techno-eugenic interventions
are being most actively promoted, advocates insist that the development
and use of human genetic manipulation technologies are "inevitable." But
most Americans oppose the creation of human clones and designer babies.
Indeed laws proscribing human cloning and germline engineering are already
in place in dozens of other countries around the world.
Women's
organizations in the U.S. and internationally are positioned to play a
crucial role in the political mobilizations and cultural shifts that will
be necessary to challenge the techno-eugenic agenda. Though only a few
women's groups have taken positions on the new human genetics, many have
thought long and hard about reproductive technologies. Abortion rights
groups will have little choice about whether or not to become involved.
They will increasingly be drawn into the politics of genetic manipulation
because supporters of germline engineering and cloning have taken up their
language, keywords, and appeals. Other women's advocates will want to
engage with these issues as matters of equity and social justice; of human
rights, and of women's and children's rights to health; and of the
commercialization of reproduction and commodification of life.
It
will be far easier to prevent a techno-eugenic future if we act before
human germline engineering and cloning are developed further, whether as
technology, as ideology, or as business interests. Rejecting the dangerous
technologies and horrific politics of genetic manipulation is crucial if
we are to protect what can be called, with chilling new meaning, a "human"
future.
Perhaps it is too obvious to state, but to make dramatic
improvements in the lives of children is well within our reach. We can
focus our energies and resources on health care and prenatal care for
women; on better nutrition, health care, preschool care, and education for
children; and on restructuring work and social expectations to allow
families and friends more time together.
Proposals to genetically
redesign children drastically miss the mark. They substitute for
relatively straightforward social changes a hubristic technical fix that
would encourage a consumerist vision of children and all human
life.
Marcy Darnovsky, Ph.D., Exploratory Initiative on the
New Human Genetic Technologies, 466 Green Street, San Francisco, CA 94133.
Phone: 415-434-1403. Email and subscriptions to GENETIC CROSSROADS: teel@adax.com.
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