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Federal Document Clearing House Congressional Testimony

March 21, 2000, Tuesday

SECTION: CAPITOL HILL HEARING TESTIMONY

LENGTH: 6054 words

HEADLINE: TESTIMONY March 21, 2000 JAVIER G SALAZAR MANAGER NATIONAL MINORITY AIDS COUNCIL HOUSE APPROPRIATIONS LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION LABOR HHS APPROPRIATIONS

BODY:
March 21, 2000 Statement of Javier G. Salazar Federal Affairs Manager My name is Javier G. Salazar and I am the Federal Affairs Manager for the National Minority AIDS Council (NMAQ in Washington, DC. On behalf of NMAC, I thank you for the opportunity to testify on the impact of HIV/AIDS on communities of color and how the pressing needs these communities are experiencing can be met in part, through the Fiscal Year (FY) 2001 Labor, Health and Human Services, Education and Related Agencies Appropriations bill. NMAC is the only national organization dedicated to shaping sound, national HIV/AIDS health and social policies that are responsive to the needs of the diverse communities of color. NMAC is also committed to developing leadership and capacity within those communities to address the challenges of the epidemic. The organization represents over 600 minority community-based organizations throughout the United States (U.S.) and the territories that provide HIV prevention, treatment, and care services. NMAC would also like to thank Chairman Porter and the rest of the committee for the extraordinary leadership that has been shown in the past. We are relying on this leadership as we confront the new challenges before us in the fight against H1V/AIDS in the 21't century. This leadership has allowed our nation to make tremendous advances against this dreaded disease and has brought hope to many people living with HIV/AIDS. Unfortunately, for the vast majority of individuals living in highly impacted communities that NMAC represents, this hope has yet to become fully realized. Disparities in health among ethnic and racial minorities and subpopulations persist. Ethnic and racial minority groups continue to lag behind the White population, experiencing substantial disparities in health outcomes on many significant indicators. The disparities in health experienced by ethnic and racial minority groups are particularly evident in the case of HIV/AIDS in the U.S. While ethnic and racial minority groups in the U.S. make up 24% of the U.S. population, they represent 67% of new AIDS cases. New and powerful drug therapies have led to dramatic drops in AIDS deaths since 1996, but death rates for ethnic and racial minorities continue to lag behind. While AIDS deaths dropped generally by 45% between 1996 and 1997, deaths for Latinos dropped by 44%, African American deaths only dropped by 38%, but deaths for Whites dropped by 54%. African Americans In the African American community alone, the impact of the HIV/AIDS epidemic in the U.S. has been devastating. African Americans represent 12% of the total U.S. population, but they account for 37% of the cumulative AIDS cases and 45% of the new AIDS cases reported in 1998. The Centers for Disease Control and Prevention (CDC) currently estimates that 240,000 to 325,000 African Americans are living with HIV. Approximately I in 50 African American men and 1 in 160 African American women have HI-V. Latinos Latinos are the second most highly impacted ethnic and racial minority group. In 1998, a total of 48,266 new AIDS cases were reported in the U.S. Latinos accounted for 9,650 or 20% of these new AIDS cases yet accounted for only 13% of the total population. The Harvard School of Public Health projects that by the year 2005 the number of new AIDS cases among Latinos will surpass that of Whites. Unabated, these trends portend disaster for the Latino population in this new century. Asian and Pacific Islanders Asian & Pacific Islanders (A&PIs) are experiencing significant increases in persons living with AIDS when compared to Whites over time. The estimated number of A&PIs living with AIDS has increased by over 108%, from 1,010 in 1992 to 2,100 in 1997 compared to an increase of 58% among Whites in the same period. The proportion of cases among A&PIs appears to be low relative to the total U.S. population, however it is important to note that only a small number of states collect or report HIV/AIDS surveillance data by AP&I national origin/ethnicity and several do not report any data on A&PIs separately. As with the Latino community, many factors may serve to deter individuals from learning their HIV status and account for underreporting of HIV/AIDS among A&PIs such as social stigma, fear of jeopardizing their residency status, and lack of access to health care. Native Americans The AIDS epidemic among Native Americans -- American Indians and Alaska Natives - continues to grow. From December 1996 to December 1998, cumulative HI-V infection cases increased by 33% to 632, and the AIDS cases increased by 24% to 1,940. It is likely that the number of AIDS and HIV cases among Native Americans is higher than what has been reported to the CDC due to misclassification of the ethnicity of Native Americans by health workers and officials as White, Hispanic or Asian. The Minority AIDS Initiative is Critically Needed Clearly, the disproportionate impact that the HIV/AIDS epidemic is having on ethnic and racial minorities and subpopulations is more evident today than ever before. These populations are also overburdened by poverty and are plagued with the social ills of racism, discrimination, homelessness, substance abuse, inadequate education, joblessness, and a lack of adequate access to health care. All of these factors contribute to the persistent challenges that these communities face in combating HIV/AIDS. The Minority AIDS Initiative is a vital component of the nation's efforts to respond to the HIV/AIDS crisis in highly impacted ethnic, racial and other minority communities. This Initiative is grounded in the recognition that the fight against HIV/A11DS in highly impacted communities of color can no longer be "business as usual". By implementing this Initiative in response to the community's call for an emergency response, Congress and the federal government have acknowledged that dramatically different strategies and interventions are needed to successfully attack HIV/AIDS in these communities. NMAC strongly believes that the diverse ethnic and racial minority groups throughout this nation must be supported and equipped to develop and sustain a community- based response to the unique and evolving epidemics within their communities. The overall goal of the Minority AIDS Initiative must be to address the needs of African Americans, Latinos, Asian & Pacific Islanders, Native Hawaiians, and Native Americans in highly impacted communities by building and supporting the capacity of ethnic and racial minority community based organizations and institutions and providers to deliver culturally competent and appropriate HIV-related prevention, health care, and support services. The initiative must also seek to expand existing culturally competent behavioral research, conducted by minority principal investigators and to fund new research initiatives to develop and evaluate cultural competent intervention strategies directed towards eliminating the HIV-related health disparities experienced by ethnic/racial minority populations. Finally, the Minority AIDS initiative must serve to refocus and increase the responsiveness of traditional HIV/AIDS related ftinding streams to meet the needs of minority communities. Only by refocusing our efforts and by directly empowering communities through funding and infrastructure development can they ultimately reap many of the benefits that the nation has seen. The Minority AIDS Initiative is by no means the answer. Much remains to be done to effectively meet the growing crisis of HIV/AIDS in our communities. The Minority AIDS Initiative is the first step to ensuring that all of the nations HIV/AIDS efforts are brought to bear on the areas that require them most. To meet these goals successfully, NMAC supports doubling funding for the Minority AIDS Initiative in fiscal year 2001. In fiscal year 2000 the initiative was funded at $250.8 million. In fiscal year 2001. NMAC proposes that the initiative be funded at $500 million. The Administration provided only $274.3 million for the initiative in its FY 2001 budget request to Congress. We respectfully request that Congress once again show leadership and appropriate the funding necessary to empower ethnic and racial minority populations and subpopulations to successfully combat the epidemic. NMAC Recommendations for the Minority AIDS Initiative NMAC strongly encourages the committee to direct that all funding allocations be targeted based on the most recent and complete estimated living AIDS cases among the different ethnic and racial minorities. In addition, funding must serve to build capacity and infrastructure within these very communities to provide and fill gaps in critically needed HIV/AIDS services. This includes providing primary HIV prevention, increasing access to HIV related health and support services, and ensuring continuity of care for minority populations and subpopulations including minority women, youth, gay men, substance users, homeless, incarcerated and recently released individuals. In allocating the funds under the various programs outlined below, we urge the committee to ensure that consideration is given to the Commonwealth of Puerto Rico, the U.S. Virgin Islands, and other territories. The Ryan White CARE Act at the Health Resources and Services Administration (HRSA) The overall goal of the activities funded under HRSA must be to close the existing disparities in health outcomes experienced by ethnic and racial minorities and women of color fixing with HIV/AIDS. To achieve 100% access and 0% disparities, all Ryan White CARE Act activities, administered through HRSA, must target funding to ethnic and racial minority community based organizations and institutions, to enhance and build minority organizational and provider capacity to deliver critical services. NMAC supports allocating funding within the Ryan White CARE Act as follows: Title I. Supplemental funding should be allocated to eligible metropolitan areas to support ethnic and racial minority community based organizations and institutions. These funds must be used to develop and expand HIV-related health and support service capacity in communities of color, treatment education and services to increase adherence to appropriate HIV drug therapy regimens, support services to assist children orphaned by AIDS, and peer education to individuals living with HIV/AIDS. Funding should be made available to support technical assistance and training activities by indigenous, community-based and tribal organizations to increase the participation of minority providers and individuals living with HIV/AIDS in planning councils and to develop and disseminate culturally and linguistically appropriate materials, education and training on HIV/AIDS. Title III. Funding should be allocated for planning grants, direct service grants and targeted technical assistance and capacity building grants to ethnic and racial minority community-based health care and service providers. Funds should also be made available to national, regional and local organizations representing people of color to provide technical assistance, and enhance collaborations, and linkages designed to strengthen HIV /AIDS systems of care in highly impacted and underserved communities of color. Funding should also be used to support targeted planning grants designed to build the HIV primary care capacity of indigenous minority organizations. Title IV. Funds should be allocated to support traditional minority community-based providers of services to minority women, children, youth and families. Part F. Funding through the AIDS Education & Training Centers should be targeted to continue to develop and expand minority provider education subcontracts with Historically Black Colleges and Universities (HBCUs), Hispanic Serving Institutions (HSIs) and national ethnic and racial minority medical and nursing associations. Funding through the Special Programs of National Significance should be directed to support indigenous, community-based and tribal organizations to evaluate the HIV/AIDS services needs of, and develop models of care to address the needs of Native Americans, Asian Americans, Native Hawaiians and Other Pacific Islanders living with HIV/AIDS. Centers for Disease Control and Prevention (CDC) NMAC supports allocating resources to the CDC to support activities designed to fund ethnic and racial minority community based organizations and institutions to address the trends of the HIV/AIDS epidemic in communities of color. NMAC supports the use of Minority AIDS Initiative resources for the following programs and activities: Directly Funded Minority Community Based Organization (CBO) Program. This program must be expanded to fund grant applications from minority organizations with a history of providing culturally competent and linguistically appropriate services to communities of color. CDC Community Development Program. Funds should be used to support new grants and enhance existing grants to support needs assessments and enhance community planning processes to integrate HIV, STD, TB, substance abuse prevention and treatment, care and community development within communities of color. Faith-based Prevention Programs. Funds should be used to support new faith-based prevention programs in diverse ethnic and racial minority populations and to support and enhance existing faith- based programs. Technical Assistance Programs. Funds should be allocated to continue to provide technical assistance for grantees under the Directly Funded Minority CBO program, for Faith-Based Initiative Programs, and to develop and strengthen their capacity of existing and new programs to provide targeted primary and secondary prevention services. Surveillance. Funding should be allocated to the CDC to improve the collection, analysis and dissemination of HIV and AIDS surveillance and other epidemiological data regarding Native American, Asian American, Native Hawaiian and Other Pacific Islander populations by the CDC and by state, local and territorial health departments. National Institutes of Health (NIH) - Office of Research on Minority Health NMAC supports the allocation of funds to expand research to develop and strengthen science-based HIV prevention and care interventions for highly impacted ethnic and racial minority groups. Funding should be targeted to support new culturally competent behavioral research projects and expand existing culturally competent behavioral research projects, conducted by minority principal investigators, that seek to identify the factors and interventions that promote HIV risk reduction behaviors and reduce disparities in HIV related health outcomes. These projects should examine the role of cultural and gender factors that affect women's risk for HIV infection, develop interventions to reduce HIV infection through high-risk behaviors, and develop interventions that decrease the rate of mortality in targeted minority populations. NMAC also supports using funds to increase the number of Native American, Asian American, Native Hawaiian and other Pacific Islander principal investigators funded to conduct HIV behavioral research targeting the links between sexual behaviors, substance use and HIV infection among Native Americans, Asian Americans, Native Hawaiians and other Pacific Islanders. Substance Abuse and Mental Health Services Administration (SAMHSA) NMAC supports increasing funding to SAMHSA to increase activities that strengthen the capacity in communities of color to provide substance treatment services. Minority Initiative resources must be used to support and expand the Center for Substance Abuse Treatment's (CSAT) targeted service expansion and capacity building to minority, community-based substance abuse treatment. These activities should address the special needs of underserved subpopulations including minority women, youth, gay men, incarcerated and recently released individuals and multiply diagnosed individuals. Funding should also be targeted to support existing programs and expand activities under the Center for Substance Abuse Prevention (CSAP) that strengthen integrated substance abuse and HIV/AIDS prevention capacity in communities of color and to address the unique needs highly impacted adolescents, out of school, homeless and runaway youth. NMAC supports the use of funds to enhance state and county efforts to plan and develop integrated substance abuse and HIV/AIDS treatment and prevention services to communities of color. Funds should also be used to support existing substance abuse treatment facilities for pregnant and postpartum women and to expand the program through a competitive process. Office of the Secretary, Public Health and Social Services Emergency NMAC supports funding for the Office of the Secretary, Public Health and Social Services Emergency Fund, to support existing and expand integrated HIV, substance abuse and mental health prevention and care activities aimed at decreasing the HIV/AIDS related health disparities experienced by ethnic and racial minority populations, including underserved subpopulations of minority women, youth, gay men, incarcerated and recently released individuals and multiply diagnosed individuals. Office of the Secretary, Office of Minority Health (OMH) NMAC supports additional funding for OMH to develop new and expand existing activities and programs to address the trend of the epidemic in communities of color and subpopulations. These funds should be allocated based on priorities identified in the previous fiscal year, which include support for the Minority Community Coalition Demonstration Grants program and the Bilingual/Bicultural Demonstrations Grants Program targeted to fund H1V/A_IDS prevention activities by minority organizations. In addition, funding must be targeted to support new H1V/AlDS prevention activities by at least four indigenous, community- based organizations in Native American, Asian American, Native Hawaiian and other Pacific Islander communities through the OMH's Minority Community Coalition Demonstration Grants program and its Bilingual/Bicultural Demonstration Grants program. Funds should be targeted to national, regional and local minority organizations with a history of service to communities of color to provide technical assistance and to expand the National Minority Organization/Cooperative Agreement Program. Funds should also be directed to expand and strengthen contracts with HBCUs and HSIs to provide funding to minority behavioral scientists to enhance the implementation of research-based prevention activities for disease prevention, health promotion and HIV/AIDS in conjunction with community organizations targeting minority populations. Conclusion NMAC strongly believes that if we are to reduce and ultimately eliminate the tragic impact that the HIV/AIDS epidemic is having on ethnic and racial minority populations and subpopulations, Congress must give these communities the tools and resources they require to combat the epidemic. Fully funding the Minority AIDS Initiative will ensure that these communities can begin to build capacity and the service delivery infrastructure needed to close the gaps in HIV/AIDS health outcomes and to ultimately share in the success and hope that many in the nation have and are experiencing.

LOAD-DATE: March 30, 2000, Thursday




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