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Copyright 1999 Plain Dealer Publishing Co.  
The Plain Dealer

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December 19, 1999 Sunday, FINAL / ALL

SECTION: FORUM OPINION & IDEAS; Pg. 1G

LENGTH: 980 words

HEADLINE: HEALING ON A BUDGET;
THE UNINSURED AND THEIR DOCTORS STRUGGLE

BYLINE: By Wendy Johnson, M.D.

BODY:
The uninsured are in vogue again, and none too soon. During the past few years of neglect, the problem of access to health care may have faded from the political consciousness, but it has only grown worse for the burgeoning number of people (nearly 45 million at last count) who struggle daily to take care of themselves and their families in an increasingly hostile system.

Those of us who treat the uninsured or underinsured have been forced to become specialists in a niche of medicine with few medicines or tests and almost no high-tech studies. We become experts in getting a few precious drops for our patients from the sea of medical technology surrounding them, but denied to them. Often we are faced with problems about which we can do very little. There was the pregnant woman who thought she just had the flu and waited until she couldn't eat or drink to come into the hospital because she couldn't afford the bill for a doctor's visit. She miscarried from an overwhelming infection. A young mother with a sudden onset of intractable headaches, nausea and vomiting had to choose between paying the rent and paying for a CAT scan of her brain to rule out the possibility of a tumor. I worry about the Nicaraguan immigrant who could not afford a mammogram to investigate an ominous mass in her breast and the 35-year-old man with diabetes who doesn't have the money to pay for critical blood testing to monitor his illness.

Simply by living in poverty, these patients share increased risk for infectious diseases, asthma and complications of chronic illness. I wonder what happens to the patients who don't even make it into my office. They are reflected in the statistics: the higher infant mortality rates and shorter life expectancies in the poorest neighborhoods.

There are no formal residencies for this "specialty." Many of us did our training in primary care, internal medicine, family practice or pediatrics. We found residencies in inner cities and rural areas which would teach us the combination of social work, political advocacy and medicine that we need to care for our patients in a terribly flawed system. We learn which are the cheapest antibiotics and blood-pressure medications and we often write a prescription based on cost rather than on more medically respectable grounds like efficacy or side-effect profiles. We learn to pare down to the essentials, judiciously narrowing our diagnostic studies to a vital, affordable few.

We practice at public hospitals or community health centers, which attempt to provide "charity care" to the uninsured, at least those lucky enough to live near such increasingly rare and overburdened institutions. But even in the cobbled-together network of hospitals and clinics that serve the uninsured, people fall through the cracks. Some live far from the facilities and have no transportation. Some are immigrants, both with and without legal status, whom we allow to do our hardest labor while we deny them access to basic health care. Some have problems like drug addiction or mental illness for which accessible treatments are even scarcer than for other medical problems.

Of course, I don't like to practice medicine this way: spending an hour on the phone to find mental health services for a patient; begging free samples from drug company representatives; calling specialists to find one who will allow patients to pay off their bill at $10 a month. It certainly isn't what I was taught in medical school, where we heard the virtues of high-tech medicine extolled at every opportunity. But because of the growing recognition of our two-tiered practice of medicine, we now have our own professional society, the Association of Clinicians of the Underserved, and our own medical journal, The Journal of Poor, Underserved and Indigent Medicine. Demand for our services is growing as the nation's policy-makers show little interest in taking on the lobbyists who represent the interests of private HMOs and insurance companies.

Until recently, the only nod in the general direction of health care reform was the contentious Patient's Bill of Rights. It grants no rights to most of my patients. No amount of tinkering will cure the terminal ills of the for-profit medicine industry. Of all the presidential candidates, only Bill Bradley has come close to offering a proposal for universal coverage, and his idea does little to address the growing power of corporate CEOs in deciding what our health-care system will look like in the future.

In this era of unprecedented prosperity and federal budget surpluses, we must do more. Two simple ideas could be enacted right now. First, at the state level, expand Medicaid to cover all those living on wages up to 200 percent of the poverty level. This expansion would provide care to whole families instead of covering children and neglecting their parents. The windfall that the states are now experiencing from welfare reform and tobacco settlements could be used to fund this expansion. Second, go beyond President Bill Clinton's Medicare proposal. Add a meaningful prescription drug benefit to the Medicare program and lower the eligibility age to 55. We should be expanding programs that work rather than fiddling with systems which benefit no one but the wealthy executives and investors in the medical-industrial complex.

These incremental changes should be only the first step down the road to seriously reforming the health care system so that it works for people, not for profit. Perhaps because politicians on the state and federal level are so beholden to health industry lobbyists there is little serious discussion of substantive reforms. Unfortunately, for the foreseeable future, it looks like those of us trained to practice underserved medicine will have no shortage of patients, taking care of those that for-profit medicine rejects.

LOAD-DATE: December 20, 1999




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