CIS/Index
Copyright © 1999, Congressional Information
Service, Inc.
99 CIS H 27173
TITLE:
Medical Records Confidentiality in the Modern Delivery of
Health Care
CIS-NO: 99-H271-73
SOURCE: Committee on Commerce.
House
DOC-TYPE: Hearing Retrieve
the full text of testimony
DATE: May 27, 1999
LENGTH:
iii+121 p.
CONG-SESS: 106-1
ITEM-NO: 1019-A-01; 1019-B-01
SUDOC: Y4.C73/8:106-34
SUMMARY:
Committee Serial No. 106-34. Hearing before the Subcom on Health and
Environment to examine issues relating to establishment of Federal standards to
protect the confidentiality of personal medical information,
including protecting patient medical histories during
medical research, in light of concerns about the
privacy of computerized medical records.
Supplementary material (p. 17-20, 120-121) includes a submitted
statement and a witness's written replies to Subcom questions.
CONTENT-NOTATION: Medical info
confidentiality protection, Fed standards estab, issues review
DESCRIPTORS:
SUBCOM ON
HEALTH AND ENVIRONMENT. HOUSE; HEALTH FACILITIES AND SERVICES; RIGHT OF
PRIVACY; MEDICAL REGULATION; INFORMATION
SERVICES AND SYSTEMS; COMPUTERS; MEDICAL ETHICS;
MEDICAL RESEARCH
99-H271-73 TESTIMONY NO: 1
May 27, 1999 p. 10-17, 20-36
WITNESSES (and
witness notations):
HAMBURG, MARGARET A. (Assistant
Secretary, Planning and Evaluation, HHS); accompanied by
EISENBERG, JOHN M. (Administrator, Agency for Health Care
Policy and Research) and
SKIRBOLL, LANA R. (Associate
Director, Science Policy, NIH)
STATEMENT AND DISCUSSION:
Recommendations for legislation to safeguard
privacy of health information; issues involved
in protecting patient medical history in
medical research.
CONTENT NOTATION:
Medical info confidentiality protection,
Fed standards estab, issues review
TESTIMONY DESCRIPTORS:
DEPARTMENT OF HEALTH AND HUMAN SERVICES
99-H271-73 TESTIMONY NO: 2 May 27, 1999 p.
37-84
WITNESSES (and witness notations):
JACOBSEN, STEVEN J. (Dr.) (Physician Researcher, Mayo
Clinic)
AMDUR, ROBERT (Dr.) (former Chair, Institutional
Review Board, Dartmouth Medical School)
STUMP, DAVID C. (Dr.) (Vice President, Clinical
Development, Genentech, Inc)
VISCO, FRANCES M. (President,
National Breast Cancer Coalition)
GENCARELLI, DAWN M.
(Manager, Health Policy, Harvard Pilgrim Health Care)
MEYERS, ABBEY S. (President, National Organization for
Rare Disorders)
KRINSKY, DANIEL L. (Director, Patient Care
Services and Pharmacy Practice, Ritzman Pharmacies; representing National
Association of Chain Drug Stores)
LATANICH, TERRY S.
(Senior Vice President, Government Affairs, Merck-Medco Managed Care, LLC)
STATEMENTS AND DISCUSSION:
Differing views
on the impact of proposed medical records confidentiality
legislation on researchers' ability to conduct medical
research; need for legislation governing medical information
privacy; review of Merck-Medco Managed Care use of patient-identifiable
information in managing prescription drug benefits for various
health plans.
CONTENT NOTATION:
Medical info confidentiality protection,
Fed standards estab, issues review
TESTIMONY DESCRIPTORS:
MERCK AND CO.; DRUGS; HEALTH INSURANCE
99-H271-73 TESTIMONY NO: 3 May 27, 1999 p.
84-120
WITNESSES (and witness notations):
ZUBELDIA, KEPA (Vice President, Technology, Envoy Corp.;
representing Association for Electronic Health Care Transactions)
KOYANAGI, CHRIS (Director, Policy, Judge David L. Bazelon
Center for Mental Health Law; representing Consumer Coalition for Health
Privacy)
O'KEEFE, MARK (Commissioner,
Montana Department of Insurance; representing National Association of Insurance
Commissioners)
MEYER, ROBERTA (Senior Counsel, American
Council of Life Insurance)
STATEMENTS AND DISCUSSION:
Opposing views on proposals to preempt State laws relating
to medical records privacy and
confidentiality, with recommendations (related graphs, p. 89-91); concerns of
life insurance industry regarding proposed medical record
confidentiality legislation.
CONTENT NOTATION:
Medical info confidentiality protection,
Fed standards estab, issues review
TESTIMONY DESCRIPTORS:
ASSOCIATION FOR ELECTRONIC HEALTH CARE TRANSACTIONS;
FEDERAL-STATE RELATIONS; INSURANCE COMPANIES; STATE LAWS; LIFE INSURANCE
