CIS/Index
Copyright © 1999, Congressional Information
Service, Inc.
99 CIS H 27194
TITLE: Medical
Information Protection and Research Enhancement Act of 1999
CIS-NO:
99-H271-94
SOURCE: Committee on Commerce. House
DOC-TYPE:
Hearing Retrieve
the full text of testimony
DATE: July 15, 1999
LENGTH:
iii+165 p.
CONG-SESS: 106-1
ITEM-NO: 1019-A-01; 1019-B-01
SUDOC: Y4.C73/8:106-53
SUMMARY:
Committee Serial No. 106-53. Hearing before the Subcom on Health and
Environment to consider H.R. 2470, the Medical Information Protection and
Research Enhancement Act of 1999, to establish Federal standards to protect
patient health information from inappropriate disclosure.
Supplementary material (p. 164-165) includes a submitted statement.
CONTENT-NOTATION: Medical info confidentiality
protection, Fed standards estab
BILLS: 106
H.R. 2470
DESCRIPTORS:
SUBCOM ON HEALTH AND ENVIRONMENT. HOUSE; MEDICAL
REGULATION; HEALTH FACILITIES AND SERVICES; RIGHT OF PRIVACY; INFORMATION
SERVICES AND SYSTEMS; MEDICAL ETHICS; MEDICAL INFORMATION PROTECTION AND
RESEARCH ENHANCEMENT ACT
99-H271-94 TESTIMONY NO: 1
July 15, 1999 p. 19-126
WITNESSES (and witness notations):
NIELSEN, JOHN T. (Senior Counsel and Director, Government
Relations, Intermountain Health Care)
TANG, PAUL C. (Dr.)
(Medical Director, Clinical Informatics, Palo Alto Medical Clinic)
PAWLAK, LINDA (mother of asthmatic child)
APPELBAUM, PAUL S. (Dr.) (Chairman, Department of
Psychiatry, University of Massachusetts Medical School; representing American
Psychiatric Association)
FELDBLUM, CHAI R. (Director,
Federal Legislation Clinic, Georgetown University Law Center; representing
Consortium for Citizens with Disabilities Privacy Working Group)
STATEMENTS AND DISCUSSION:
Differing views on H.R.
2470; need for legislation to ensure the maintenance of patient confidentiality
while facilitating responsible use of patient information; importance of
maintaining patients' medical records confidentiality.
Sectional comparison of H.R. 2470 and similar H.R. 1941,
the Health Information Privacy Act; perspectives on various
aspects of H.R. 2470.
INSERTION:
--
Georgetown University Institute for Health Care Research and Policy, "Best
Principles for Health Privacy" Health Privacy Project working group report, July
1999, with bibliography (p. 40-91).
CONTENT NOTATION:
Medical info confidentiality protection, Fed standards
estab
TESTIMONY DESCRIPTORS:
GEORGETOWN
UNIVERSITY; BIBLIOGRAPHIES; HEALTH INFORMATION PRIVACY ACT
99-H271-94 TESTIMONY NO: 2 July 15,
1999 p. 127-164
WITNESSES (and witness notations):
CARTY, CRISTIN (Vice President, Public Policy, California
Healthcare Institute)
JOHNSON, RANDEL K. (Vice President,
Labor and Employee Benefits, Chamber of Commerce of the U.S)
ANDREWS, ELIZABETH B. (Director, World Wide Epidemiology,
Glaxo Wellcome)
KOSKI, GREG (Director, Human Research
Affairs, Partners HealthCare System)
FREY, CAROLIN (Chair,
Institutional Research Review Board, Geisinger Medical Center)
STATEMENTS AND DISCUSSION:
Need to ensure that medical
records privacy legislation does not prevent access to information necessary to
conduct medical research; opposition to H.R. 2470 inclusion of a private right
of action; perspectives on independent review board system role in protecting
human research subjects; perspectives on H.R. 2470, including legal issues.
CONTENT NOTATION:
Medical info
confidentiality protection, Fed standards estab
TESTIMONY
DESCRIPTORS:
GLAXO WELLCOME PLC; STANDING IN COURT; HUMAN
EXPERIMENTATION; MEDICAL RESEARCH 
