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Copyright 1999 Journal Sentinel Inc.  
Milwaukee Journal Sentinel

November 9, 1999, Tuesday Final

SECTION: News Pg. 1

LENGTH: 695 words

HEADLINE: Shalala slams 'hoarding of organs,' demands fairer allocation system  
She also proposes plan to improve children's health

BYLINE: MARILYNN MARCHIONE

SOURCE: Journal Sentinel staff

BODY:
"The hoarding of organs" for transplants by a state or a region "is both immoral and unethical," Donna Shalala, U.S. secretary of Health and Human Services, said Monday.

In a news conference after a speech she gave at Children's Hospital of Wisconsin, Shalala used strong language to repeat her intention to change the nation's organ allocation system -- a move that's been strongly opposed in Wisconsin and several other states.

"There still is movement that is taking place" among parties involved in the dispute, and that alone indicates that the system hasn't been as fair as its proponents claim, Shalala said.

Contacted afterward, Anthony D'Alessandro, a liver transplant surgeon at the University of Wisconsin-Madison who has represented this state's position on the issue, said "hoarding" was an inappropriate and inaccurate term. "Hoarding of organs implies that we're stockpiling them, which is clearly not the case," he said. "We're taking care of patients who are in need and who need transplants."

He also said Wisconsin officials are lobbying Congress to adopt a new moratorium that would delay rules Shalala announced last month until the entire issue of her office's authority over the transplant system is settled by Congress.

But Shalala made it clear she wants no further delay. The system has worked financially for transplant centers, "but didn't necessarily work for the patient," who faced varying odds of getting an organ depending on where he or she lived, she said.

"We are moving toward a fairer system," Shalala said. Recent negotiations among transplant programs in Wisconsin, Minnesota and Illinois on a payback system that would allow wider sharing of donated livers "have been an indication of that," she said.

Shalala's comments came during a visit to announce what will become a new annual lectureship at Children's. It was named for Marvin Glicklich, who was the first at the hospital to hold the title of surgeon-in-chief. He held that job from 1994 until his retirement in 1997. Glicklich also was the first board-certified pediatric surgeon in Milwaukee.

During her speech, Shalala laid out what she called the nation's unfinished agenda for children's health.

"Even though children are only 26% of America's population, they are 100% of America's future," she said. "Unless we act now to strengthen and protect children's health, that future could come to resemble America's health care past."

Shalala outlined a 10-point plan for completing that agenda, including:

Reaching children and parents through modern communication tools, such as the Internet. "Forty percent of all the hits on the Internet are now for health care information," Shalala said. "The most important thing for parents to understand is that everything on the Internet isn't necessarily science-based information," she said, citing the example of anti-vaccine groups masquerading as immunization information sites. People need to look for health care information from "respectable institutions" such as the National Institutes of Health, she said.

Safeguarding genetic and other medical information and ensuring privacy. "We can never allow our science to get ahead of our ethics," Shalala said. "We must never create a world in which our genetic map is used to deny jobs or health insurance."

Focusing "like a laser" on prevention efforts. Immunization and the Back to Sleep campaign to prevent sudden infant death syndrome are examples of successful prevention programs, but more are needed, Shalala said. Enrolling more children in the Children's Health Insurance Program and Medicaid is key to getting them needed preventive health care, she said.

Seeing global health problems as the threats to American health that they are. "Promoting children's health worldwide isn't charity, it's in our own best interest," she said.

Increasing support for research, and getting drugs labeled for safe pediatric use. Roughly 80% of drugs prescribed for children have never been tested in that age group, she said.

Reducing racial disparities in health care and in the training of health care professionals.

GRAPHIC: Photo  
DALE GULDAN 
STAFF PHOTOGRAPHER


Donna Shalala, secretary of the U.S. Department of Health and Human
Services, offers 10 principles for better health care for children in a
speech Monday at Children's Hospital of Wisconsin.

LOAD-DATE: November 10, 1999




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