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Copyright 1999 P.G. Publishing Co.  
Pittsburgh Post-Gazette

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March 4, 1999, Thursday, SOONER EDITION

SECTION: NATIONAL, Pg. A-10

LENGTH: 1080 words

HEADLINE: SCHOOLS MUST PAY FOR NURSES FOR DISABLED;
SUPREME COURT'S INTERPRETATION OF 1975 LAW IS CERTAIN TO BURDEN THE NATION'S;
SCHOOL DISTRICTS

BYLINE: MARY DEIBEL, SCRIPPS HOWARD NEWS SERVICE

DATELINE: WASHINGTON

BODY:


Even as President Clinton and Congress pledged to give public schools more flexibility in spending federal dollars, the Supreme Court issued a reminder yesterday of the costly strain that federal mandates can put on school district budgets.

Ruling 7-2 in the closely watched case of a paralyzed Iowa teen-ager, the justices said a 1975 federal law mandating "a free, appropriate public education" to disabled students requires school districts to pay for one-on-one nursing care to stu dents who need continuous care during school hours.

There are an estimated 17,000 such students nationwide.

"The district may have legitimate financial concerns, but our role is to interpret existing law," Justice John Paul Stevens wrote for the court. He said the issue wasn't cost but the law's requirement that "meaningful access to the public schools will be assured." Justice Clarence Thomas, in a dissent written for himself and Justice Anthony Kennedy, warned the ruling stands to "blindside" school district budgets.

The decision is a happy victory for Garret Frey, described by Stevens as a "friendly, creative, intelligent young man" who suffered a severed spinal cord in a motorcycle accident at age 4 and now needs a ventilator and other mechanical assistance that require constant maintenance.

The ruling also marks the latest chapter in the long, sad saga of the Individuals With Disabilities Education Act since it was passed almost 25 years ago.

For all the promise the law holds for the disabled, federal policy-makers have never made good on their pledge to fund the law, which has helped push spending on disabled students to $ 15,000 per pupil a year on average, compared with $ 5,000 a year per healthy student.

Congress and Clinton promised to pick up 40 percent of the tab for disabled students when the law was renewed in 1997, and while federal funding has increased in the three fiscal years since, the $ 4.8 billion Washington will spend this year to carry out IDEA is only a tiny fraction of the $ 50-plus billion a year schools spent on special needs children.

Judith Heumann, Clinton's assistant secretary for special education, said the law "provides the mechanisms to assist school districts to tap other available financial resources" to lessen the burden of services covered by the Supreme Court ruling.

"I'm proud to be part of an administration that stood up for Garret's rights and that offers real assistance to schools that are responsible for implementing the law," she said.

But general counsel Julie Underwood of the National School Boards Association wondered, "Where's the money going to come from?" when the federal share of spending to carry out the law has been minimal since its enactment in 1975?

Local school districts currently account for about 50 cents on the dollar, or about $ 25 billion of the more than $ 50 billion a year the nation spends to educate 5.8 million special needs children. Another 43 cents on the dollar comes from state sources, with a bare 7 cents from the federal government.

"And that's without all-day, every-day medical care," Underwood said. "When that will cost $ 500 million a year more nationwide, where's the money going to come from? Local property taxes? State sales taxes? The federal budget surplus?"

In Pittsburgh, five or six students require nursing care during the school day, said Kaye Cupples, district coordinator for such students. If Pittsburgh had to pay those nurses salaries and benefits of $ 80,000 to $ 90,000 each, the additional cost to the district would be about $ 500,000.

Officials in several other Allegheny County school districts were less certain because no students requiring nursing care attended their schools right now. But, realizing that this could change, some officials said the cost of providing nurses to such students could drain district finances at a time when special education funds were tight.

"We want to make it possible for these students to receive educational services," said Lynne Porterfield, coordinator of educational support and special education for the Fox Chapel Area School District. "But I have to raise my voice in questioning, where do the responsibilities of public schools begin and end? How long can schools continue to bear this kind of extraordinary expense? Where will the money come from?"

On the other hand, city school board member Liz Healey, whose daughter, Bevin, 18, requires nursing care and whose family lost a similar case in federal court several years ago, hailed the decision.

Bevin Healey, a senior at Allderdice High School in Squirrel Hill, has several disabilities including cerebral palsy, chronic lung disease and blindness. Her health care needs include suctioning of her tracheotomy and monitoring of her eating through a feeding tube.

Liz Healey said her family reached the $ 1 million cap on one health insurance policy because of her daughter's nursing care and had had to change policies twice in order to continue to provide a nurse for her.

"We're going to look into this, because it really does exhaust our benefits," Liz Healey said.

Diane Ravitch, the Bush Education Department official who heads the Brookings Institution's education policy center, believes the reason Congress and the White House can't reform IDEA and face up to the federal government's financial responsibility is "fear of offending advocacy groups for children who are deaf, blind, autistic, retarded or otherwise deserving of special help."

The politically smart solution? She says, "The best hope for reform is for the administration and Congress to create a special commission removed to the maximum extent possible from political pressure . . . much like the commission that oversaw the closing of U.S. military bases."

Disability rights groups, who joined the Clinton administration in urging the Supreme Court to side with Garret Frey, were delighted by the lawsuit's outcome.
 
The Freys estimate the cost of providing Garret with daily nursing care to monitor his ventilator and take care of his needs should be no more than $ 18,000 a year to the Cedar Rapids, Iowa, schools. They're also seeking more than $ 285,000 in legal fees and nursing costs run up since they exhausted insurance money from the motorcycle manufacturer that was initially used to pay a licensed practical nurse during school hours.

Post-Gazette staff writer Carmen J. Lee contributed to this report.

LOAD-DATE: March 4, 1999




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