logo.gif (1445 bytes)Government Report 

Published monthly by The Arc, a national organization on mental retardation. 
Governmental Affairs Office; ph 202-785-3388; GAOinfo@thearc.org;
http://www.thearc.org/

Volume 30, Issue 10

December 5, 2000

In Brief
(Click on the highlighted text to jump to the article.)

blueball.gif (924 bytes) A politically divided nation elected a politically divided government in the November 7 national elections.

blueball.gif (924 bytes) Congress convened a “lame duck session” hoping to finish all of the unresolved issues and adjourn the 106th Congress before the holidays.

blueball.gif (924 bytes) President Clinton signed a law that would help place non-violent offenders with mental retardation into judicially monitored treatment programs.

blueball.gif (924 bytes) The Arc participated in a White House ceremony celebrating the 25th Anniversary of IDEA.

blueball.gif (924 bytes) A number of health-related issues have been front and center in spite of the post-election and pre-lame duck confusion that has engulfed the country.

blueball.gif (924 bytes) President Clinton signed into law a bill allowing the attorney general to waive the oath of allegiance for naturalization of certain people with disabilities.

blueball.gif (924 bytes) The Arc testified before the Work Incentives Advisory Panel the week of Nov. 13.

blueball.gif (924 bytes) President Clinton signed into law legislation to assist families in locating missing adults.

blueball.gif (924 bytes) A U.S. Court of Appeals upheld the constitutionality of the Fair Housing Amendments Act in Groome Resources Ltd. v. Parish of Jefferson.

blueball.gif (924 bytes) Notes.


Elections Leave a Divided Government; Presidency Undecided 107th Congress Begins to Organize

A politically divided nation elected a politically divided government in the November 7 national elections. Although Republicans retained a majority in the House, they will be ruling with one of the narrowest margins in congressional history.

The House Republicans will hold a five vote majority of 221 to 212 (compared to 222-209 with two vacancies, a seven vote majority in the 106th Congress) with two independents ,one who generally votes with the Republicans and one who generally votes with the Democrats.

When Maria Cantwell (D) was finally declared the winner over incumbent Slade Gorton (R) in Washington state, the Senate count became 50 Republicans and 49 Democrats (it was 55-45 in the 106th Congress). If George Bush wins the presidency, Democratic vice-presidential candidate, Joe Lieberman (D-Conn.), will return to the Senate as the 50th Democratic Senator. This means that the tie-breaking vote would fall to Vice President Cheney. If Gore wins the presidency, Lieberman’s seat will likely be taken by a Republican and the count will be 51 Republicans and 49 Democrats. If there is a 50-50 Senate split, changes will have to be made in how the Senate organizes itself in relation to leadership and committee structures. To make it even more confusing, during the first seventeen days of the new Congress, Democrats will have the majority in the Senate because Gore will still preside over the Senate as Vice President.

107th Congress begins reorganization

Following the elections, the usual reorganization of the new Congress began. House Democrats and Republicans reelected their leaders. Rep. Dennis Hastert (R-Ill.) will remain as Speaker with Rep. Dick Armey (R-Texas) as Majority Leader and Rep. Tom Delay (R-Texas) as Majority Whip. Rep. Richard Gephardt (D-Mo.) will remain Minority Leader, with Rep. David Bonior (D-Mich.) maintaining his Minority Whip role. The Senate scheduled leadership elections for Dec. 5. Democrats and Republicans also ceremoniously welcomed the newly-elected Members of Congress and held orientation activities. There are 42 new Representatives and 11 new Senators in the 107th Congress.

Due to the undecided presidential contest and several contested congressional races, committee assignments and full and subcommittee chairmanship selections will not begin until January. The number and ratio of members for each committee will also have to be decided at that time. In the Senate, if Governor Bush wins the presidency, there will basically be no majority or minority, except in the case of a tie vote when the Vice President can step in. Senate Democrats are demanding equal representation on committees, bigger staff budgets and even discussed the possibility of co-chairmanships. Republicans dismissed the idea of co-chairmanships. None of these issues will be resolved until mid-January.

The delay in reorganizing the committees has not prevented lobbying by Members for the best assignments. There are several coveted spots open in the Senate due to retirements and election losses. In the House, the six-year term-limits for many committee chairs self-imposed in 1995 as part of the “Contract With America” are now up, forcing a change in leadership on almost every committee.

Following are some of the important committee leadership decisions that are being watched closely by The Arc.

In the Senate, the election defeat of Sen. William Roth (R-Del.) leaves the chairmanship of the powerful Finance Committee open. This committee has jurisdiction over Social Security, Medicaid, Medicare, and welfare. Roth received the distinguished Chafee Award from The Arc just last year for his work on the Ticket to Work and Work Incentives Improvement Act. Sen. Charles Grassley (R-Iowa) is the next Republican in line and will most likely be selected for this position. Max Baucus (D-Mont.) is next in line to replace retiring Daniel Patrick Moynihan (D-N.Y.) as ranking minority member. There are at least three other Democratic and one Republican vacancy on that committee, depending on the new committee ratios.

Up in the air is also the important chairmanship of the Appropriations Committee’s Labor, Health and Human Services and Education Subcommittee with jurisdiction over most programs important to people with mental retardation. Due to the frustration of the L-HHS-ED appropriations bill being held hostage, current Chairman Arlen Specter (R-Pa.) indicated a willingness to switch committees.

The Constitution Subcommittee of the Senate Judiciary Committee lost its chairperson with the defeat of Sen. John Ashcroft (R-Mo.). This committee deals with civil rights issues, including the Americans with Disabilities Act, Fair Housing Act, juvenile justice legislation and the proposed Hate Crimes Prevention Act. Sen. Robert Smith (R-N.H.) is next in line for this position, although it is rumored that he would prefer another post.

The House Republican leadership will begin two full days of interviews the week of Dec. 4 with potential chairmen for the dozens of vacant committee and subcommittee leadership posts.

With Rep. Bill Archer (R-Texas) retiring, Reps. Phil Crane (R-Ill.), Bill Thomas (R-Calif.), and Clay Shaw (R-Fla.) are jockeying for chair of the Ways and Means Committee. This committee works on Social Security, Medicare, health care, and tax and revenue issues.

There are also a number of vacancies on the House Commerce Committee with jurisdiction over public health, community-based supports and services and developmental disabilities programs. With Chairman Thomas Bliley, Jr. (R-Va.) retiring, Billy Tauzin (R-La.) and Michael Oxley (R-Ohio) are vying for that coveted spot. There are four other Republican vacancies and at least one Democratic vacancy on that committee.

The House Appropriations Committee will also see changes. Rep. John Porter (R-Ill.), who retired, was chairperson of the Labor, HHS, and Education Subcommittee. Rep. Ralph Regula (R-Ohio) may be urged to take the position; however, Rep. Ernest Istook (R-Okla.), the lead author of legislation to silence the advocacy voice of nonprofits, has also expressed an interest. There are at least two other Republican vacancies on that committee. There is also the possibility of a change in the chairmanship of the HUD-VA Appropriations Subcommittee. It looks like current chairperson, Rep. Jim Walsh (R-N.Y.) may take over the leadership of another subcommittee and Rep. David Hobson (R-Ohio) may become chairperson of HUD-VA.

Since Rep. Bill Goodling (R-Pa.) also is retiring, the House Education and the Workforce Committee will also be governed by a new chairperson Rep. Tom Petri (R-Wis.) is next in line, but Reps. John Boehner (R-Ohio) and Peter Hoekstra (R-Mich.) have also expressed an interest in the job. Ranking Democrat Rep. William Clay (D-Mo.) is retiring and Rep. George Miller (D-Calif.) is expected to move into that spot. This committee will be tackling the stalled reauthorization of the Elementary and Secondary Education Act where further debates about weakening amendments to IDEA could take place.

House Budget Committee Chairman John Kasich (R-Ohio) also retired leaving that position open. Reps. Jim Nussle (R-Iowa), Saxby Chambliss (R-Ga.), John Sununu (R-N.H.) and Nick Smith (Mich.) are vying for that position. Several other vacancies must also be filled on that committee.

There will be lots of reshuffling on the House Banking and Financial Services Committee with jurisdiction over housing issues. There are at least six Republican and two Democratic vacancies on that committee. Reps. Marge Roukema (R-N.J.) and Richard Baker (R-La.) are jockeying to replace Chairman Jim Leach (R-Iowa). Leach must leave the post because of the six-year term-limit rule for chairmen. The Housing and Community Opportunity Subommittee also lost its chairperson, Rep. Rick Lazio (R-N.Y.), who ran for the Senate in New York and lost. Lazio is also a recent recipient of The Arc’s Chafee Award.

Finally, the House Judiciary Committee must also select a new chairman due to term limits. Rep. James Sensenbrenner (R-Wis.) is next in line to replace Rep. Henry Hyde (R-Ill.). The Constitution Subcommittee will also have to replace the retiring Charles Canady (R-Fla.). Like its Senate counterpart, this committee may reconsider the juvenile justice bill that contained amendments to IDEA as well as the Hate Crimes Prevention Act.

Bipartisan cooperation or gridlock

The big question -- no matter who becomes President -- is whether or not the 107th Congress will be able to work together. With such a narrow majority, Republicans will be compelled to work with Democrats to enact any major legislation. The alternative is that both sides could continue to refuse to work together and the big issues will continue to be stalled. Although both Democratic and Republican leaders are talking about reaching out in bipartisan cooperation, they are also currently waiting for the outcome of the presidential election to see who will have more leverage in the negotiations to complete the unfinished business of the 106th Congress. The Arc will be watching closely as the 106th Congress completes its business and the new Congress continues to take form and sets an agenda for the next year.


Congress Convenes Unusual “Lame Duck” Session

Members of Congress returned to Washington following the November 7 elections for an unusual “lame duck” session (see side bar) but decided to put off work on the big issues until after Thanksgiving. Blaming the distraction of the as yet undecided presidential election, the House and Senate passed a 16th continuing resolution (CR) to keep the government agencies without appropriations running until Dec. 5. Congress then recessed for a three-week Thanksgiving holiday beginning on Nov. 14.

Congress returned the week of Dec. 4 to finish the unresolved work of the 106th Congress which includes passing four of the thirteen annual appropriations bills (including the bill that funds the Departments of Labor, Health and Human Services and Education), a $30 billion Medicare “giveback” bill; and a tax cut bill.

At first, there were rumors that a four-month continuing resolution would be considered. The long-term CR would leave the appropriations bills and all other unresolved issues to the next President and Congress. If this happens, The Arc could lose many important increases now contained in the tentative agreement between Congress and the White House, such as those for special education and the developmental disabilities programs. However, hopes for an agreement on the budget regenerated following a meeting of congressional leaders with the President on Dec. 4. At the meeting, Democrats and Republicans agreed on their willingness to finish work as soon as possible but at least before the holiday season begins. A two-day CR was being considered by the House and Senate as this issue of Government Report was going to press.

Newly-Elected Members of Congress

Sen. George Allen (R-VA) Rep. Melissa Hart (R-4th PA)
Sen. Jean Carnahan (D-MO) Rep. Mike Honda (D-15th CA)
Sen. Tom Carper (D-DE) Rep. Steve Israel (D-2nd NY)
Sen. Hillary Clinton (D-NY) Rep. Darrell Issa (R-48th CA)
Sen. Jon Corzine (D-NJ) Rep. Timothy Johnson (R-15th IL)
Sen. Mark Dayton (D-MN) Rep. Ric Keller (R-8th FL)
Sen. John Ensign (R-NV) Rep. Mark Kennedy (R-2nd MN)
Sen. Maria Cantwell (D-WA) Rep. Brian Kerns (R-7th IN)
Sen. Ben Nelson (D-NE) Rep. Mark Kirk (R-10th IL)
Sen. Bill Nelson (D-FL) Rep. James Langevin (D-2nd RI)
Sen. Debbie Stabenow (D-MI) Rep. Richard Larsen (D-2nd WA)
Rep. Anibal Acevedo Vila (D-PR) Rep. James David Matheson (D-2nd UT)
Rep. Todd Akin (R-2nd MO) Rep. Betty McCollum (D-4th MN)
Rep. Henry Brown (R-1st SC) Rep. Tom Osborne (R-3rd NE)
Rep. Eric Cantor (R-7th VA) Rep. C.L. Otter (R-1st ID)
Rep. Shelley Moore Capito (R-2nd WV) Rep. Mike Pence (R-2nd IN)
Rep. Brad Carson (D-2nd OK) Rep. Todd Platts (R-19th PA)
Rep. William Clay (D-1st MO) Rep. Adam Putnam (R-12th FL)
Rep. Ander Crenshaw (R-4th FL) Rep. Dennis Rehberg (R-At Large MT)
Rep. John Culberson (R-7th TX) Rep. Michael Rogers (R-8th MI)
Rep. Jo Ann Davis (R-1st VA) Rep. Mike Ross (D-4th AR)
Rep. Susan Davis (D-49th CA) Rep. Adam Schiff (D-27th CA)
Rep. Michael Ferguson (R-7th NJ) Rep. Edward Schrock (R-2nd VA)
Rep. Jeff Flake (R-1st AZ) Rep. Robert Simmons (R-2nd CT)
Rep. Sam Graves (R-6th MO) Rep. Hilda Solis (D-31st CA)
Rep. Felix Grucci (R-1st NY) Rep. Patrick Tiberi (R-12th OH)
Rep. Jane Harman (D-36th CA)

Mental Health Courts Bill Signed Into Law

On November 13, 2000, President Clinton signed into law the “America’s Law Enforcement and Mental Health Project” Act, P.L. 106-515. The act amends the Omnibus Crime Control and Safe Streets Act of 1968 to add a new Section V entitled “Mental Health Courts.”

The new Mental Health Courts provisions authorize the Attorney General to make grants to state and local entities to place non-violent offenders with mental illness, mental retardation, or both mental illness and substance abuse disorders into judicially monitored treatment programs.

States, state courts, local courts, units of local government, and Indian tribal governments, acting directly or through agreements with other public or nonprofit entities, are eligible to apply for up to 100 program grants. The programs must involve:

1. Continuing judicial supervision, including periodic review, over preliminarily qualified offenders with mental illness, mental retardation, or co-occurring mental illness and substance abuse disorders who are charged with misdemeanors or non-violent offenses; and

2. A coordinated delivery of services.

Services to be provided include:

  • Specialized training of law enforcement and judicial personnel to identify and address the unique needs of offenders with mental illness or mental retardation;
  • Voluntary outpatient or inpatient mental health treatment (in the least restrictive manner appropriate, as determined by the court) that carries with it the possibility of dismissal of charges or reduced sentencing upon successful completion of treatment;
  • Centralized case management involving the consolidation of all of a defendant's cases (including violations of probation) and the coordination of all mental health treatment plans and social services, such as life skills training, housing placement, vocational training, education, job placement, health care, and relapse prevention for each participant who requires such services; and
  • Continuing supervision of treatment plan compliance for no longer than the maximum allowable sentence or probation for the offense and, to the extent practicable, continuity of psychiatric care at the end of the supervised period.

The act defines "preliminarily qualified offender with mental illness, mental retardation, or co-occurring mental and substance abuse disorders" as a person who: (1) previously or currently has been diagnosed by a qualified mental health professional as having a mental illness, mental retardation, or co-occurring mental and substance abuse disorders or who manifests obvious signs of mental illness, mental retardation, or co-occurring mental and substance abuse disorders during arrest or confinement or before any court; and (2) is deemed eligible by designated judges.

The act directs the Attorney General to issue necessary regulations and guidelines, including the methodologies and outcome measures for evaluating each applicant program. The act also sets forth provisions regarding application requirements, the Federal cost share (up to 75 percent), geographic distribution of grants, reporting requirements, technical assistance, training, and evaluation. Implementation will require annual appropriations.

Key sponsors of the act were Senators Michael DeWine (R-Ohio) and Pete Domenici (R-N.M.) and Representative Ted Strickland (D-Ohio).


The Arc Participates in White House Ceremony Commemorating the 25th Anniversary of IDEA

Paul Marchand, as Chairman of the Consortium for Citizens with Disabilities (CCD), the DC-based national disability coalition, participated in an Oval Office ceremony to celebrate the 25th anniversary of the enactment of P.L. 94-142, now known as the Individuals with Disabilities Education Act (IDEA).

At the ceremony, President Clinton proclaimed November 29 as the official anniversary date of IDEA. The President also unveiled artwork by eleven-year-old Chicago special education student, Ellen Winkler, who has Down syndrome. Ms. Winkler’s winning entry of a CCD-sponsored poster contest will be converted into an IDEA 25th anniversary commemorative poster that will be distributed to all of our nation’s schools.

Marchand presented President Clinton with an IDEA Hero Award in appreciation for his administration’s strong advocacy on behalf of the six million students being served under IDEA over the course of his administration. The Clinton Administration has successfully fought to preserve the fundamental rights under IDEA. Over the past eight years, the Clinton Administration played an instrumental role in increasing funding for IDEA programs by $2.2 billion.

Following the Oval Office ceremony, the U.S. Dept. of Education and CCD hosted an IDEA birthday celebration in the Old Executive Office Building adjacent to the White House. CCD and the U.S. Department of Education were joined by other disability advocates, educators, Hill staff, and families and students with disabilities who have benefited from IDEA.

Originally known as P.L. 94-142, the Education for All Handicapped Children Act, this landmark legislation represented a major commitment to providing equal educational opportunities for young children and youth with disabilities and their families. Before this federal law was enacted, many students with disabilities were receiving an inappropriate education or not getting an education at all. In 1970, schools in the United States were educating only one in five children with disabilities. More than one million children with disabilities were excluded entirely from the education system, including many children with mental retardation.

Today, nearly six million young children and youth receive special education and related services because of IDEA programs; and services are provided to almost 200,000 eligible infants and toddlers and their families. In addition, the majority of children with disabilities are now being educated in their neighborhood schools. Many are fully or partially integrated into classrooms with students without disabilities. Unfortunately, almost sixty percent of students with mental retardation still receive their education in segregated classrooms or facilities. High school graduation rates and employment rates for students with disabilities have increased dramatically since IDEA was enacted. Post-school employment rates for youth served under IDEA are twice those of older adults with similar disabilities who did not have the benefit of IDEA.

CCD is a working coalition of approximately 100 national disability organizations working together with and on behalf of the 54 million children and adults with disabilities and their families living the United States. The Arc of the United States has been a leader in the coalition since its inception.

CCD and The Arc played an important role in the original passage of P.L. 94-142 in 1975 and its nationwide implementation. CCD and The Arc also played a significant role in helping to strengthen the law during subsequent reauthorizations in response to national concerns. Key changes include the mandate for preschool services for children between three and five years old, the establishment of early intervention services for infants and toddlers, a transition authority to better prepare students for adult life prior to leaving school, and new and expanded support programs which underpin the basic state grant program. Legislation authorizing attorneys’ fees for parents who prevail in court involving IDEA was also enacted into law.

Dsc_0171.jpg (192160 bytes) CCD and the Dept. of Education host reception at the Old Executive Office Building. In front is IDEA poster contest award winner, Ellen Winkler. In the center is Paul Marchand, Chair of CCD and Assistant Executive Director for Policy and Advocacy for The Arc. From left to right are Ellen’s teacher, James Gilliat; principal, Simon Jurinek; mother, Carol Winkler; and father, Patrick Winkler. Ellen goes to school at Pasteur Elementary School in Chicago, Ill.

Health Care Issues Still in Forefront

A number of health related issues have been front and center in spite of the post-election and pre-lame duck confusion that has engulfed the country. The U.S. Department of Labor published two important final rules related to health insurance and other employee benefits in the Federal Register on Nov. 21. Families USA, a national health care consumer organization, the Health Insurance Association of America (HIAA) and the American Hospital Association announced a joint health care reform proposal on Nov. 20. On Dec. 1, HIAA, which represents insurance companies, and the American Association of Health Plans, which represents the managed care industry, announced preliminary merger plans. In addition, it is reported that the so-called Medicare give-back bill remains high on the agendas of Congress and the Clinton Administration. However, the Administration continues to push for changes to the bill, such as the inclusion of the Family Opportunity Act.

DOL Regulations

The Department of Labor recently published a final rule that is designed to speed up claims and appeals in relation to group health plans. These protections will apply to claims filed under a health plan after Jan. 1, 2002.

The rule covers the approximately 131 million people who are in health plans covered by the Employee Retirement Income Security Act (ERISA). The rule does not apply to workers who receive coverage through public sector employment for a federal, state or local agency or those covered by health plans sponsored by churches. The major importance of this rule is that it assures that individuals will receive faster and fairer reviews. For example, rather than the 90 days or more that are allowed under the current rule, the new rule would require decisions on initial claims for benefits for urgent care claims and for decisions on appeals of denied urgent care claims within 72 hours. Individual claimants would have more time to file appeals also (180 days) rather than the current 60 days, and plans will have to consult with health care professionals in deciding appeals involving medical judgment. In addition, plans are required to provide consumers with more detailed information on their claims procedures.

Reaction to this rule has been mixed. Health care reform and consumer advocates believe that it is a step in the right direction but does not negate the need for a strong and enforceable Patient’s Bill of Rights. Health plan and insurance industry representatives give it mixed reviews. Some employers and employer groups think the rule is too onerous.

The DOL published another final rule on the same day that implements information disclosure changes recommended by the President’s Advisory Commission on Consumer Protection and Quality in the Health Care Industry. This rule specifies the information that health plans offered by private employers must disclose within a plan’s “Summary Plan Description”. Some of the new health plan information required is: any cost-sharing provisions (including premiums, deductibles, co-insurance and co-payment amounts) for which a plan participant is responsible; any annual or lifetime caps or other benefit limits; provisions governing the use of net-work providers and, under what circumstances coverage is provided for out-of-network services; the extent to which preventive services are covered; and whether, and under what circumstances, existing and new drugs are covered. This rule also finalizes an interim rule that was issued in 1998 that requires that Summary Plan Descriptions also explain consumer’s rights under the Newborns’ and Mothers’ Health Protection Act of 1996. This bill requires plans to cover hospital stays of at least 48 hours after normal childbirths and 96 hours after cesarean sections.

Families USA/HIAA/AHA Proposal

Families USA is a national organization that advocates on behalf of health care consumers. The Health Insurance Association of America (HIAA) is a national trade association representing almost 300 health insurance companies and some managed care plans. The American Hospital Association is an association of long- and short-term hospitals, health plans and health education institutions. Together, these three organizations recently released a proposal that is characterized as a bipartisan effort with the goal of increasing health care coverage for a portion of the 43 million people who are uninsured in the nation.

The proposal is targeted at workers and their families with incomes below 200 percent of poverty (see chart below) and has three main components.

  • The first is a Medicaid expansion to provide coverage for all people under age 65 with annual incomes below 133 percent of poverty. Eligibility would be based strictly on income and would apply equally to parents, children, and childless adults. This type of expansion would be subsidized with enhanced federal Medicaid matching funds.
  • The second component would give states the option to provide coverage for parents and childless adults with incomes between 133 and 200 percent of poverty through Medicaid or the State Children’s Health Insurance Program. This expansion would also be subsidized through an expanded federal match.
  • The third component would be a tax-credit to employers to help them defray the out-of-pocket premium costs of employees with incomes between 133 and 200 percent of poverty.

Reviews of this proposal are mixed. It is admittedly another incremental step towards coverage targeting a limited group of people. Providing people with access to Medicaid is an idea that has benefit because of the potential for access to a wide range of important health supports and services. Providing access to a CHIP package of benefits can be less helpful for individuals with disabilities since, in numerous states, CHIP benefits are not as expansive as those provided through Medicaid. Enacting a tax credit for employers to help cover employee’s insurance costs may be seen as a positive step if the benefit package that employees receive actually meets their needs and the needs of their families.

The future of this and any other health care reform proposal is up in the air. However, the future of this proposal may face additional uncertainty since the HIAA and the American Association of Health Plans (AAHP) are reportedly trying to negotiate a merger. Such a merger would link the lobby for traditional insurance companies (HIAA) with the lobby for most managed care plans (AAHP). Neither group has been supportive of a major overhaul of the nation’s health care system. In fact, the HIAA was behind the “Harry and Louise” commercials that helped sink the Clinton health plan. The AAHP, in reaction to the fact that people want managed care reform and have made this known to their Members of Congress, has recently begun to speak positively about some managed care consumer protections. However, on the issue of liability and medical necessity, neither group is seen as consumer-friendly and a merged organization will be a very strong adversary in the battle for health care reform.

Medicaid

A number of regulatory activities are also taking place in relation to Medicaid. The Arc provided comments to the Health Care Financing Administration’s proposed rule to give the states more flexibility in relation to Federal Financing Participation Limits. This rule would allow states to relax some of its Medicaid income eligibility requirements. This change would benefit both people and the state because more people could be eligible and a state would not be penalized by a cut in federal matching funds. The comments of The Arc urge swift publication of the final rule because with this additional flexibility, states could better meet the individualized needs of children and adults with mental retardation in relation to both acute health care as well as long term supports and services. This proposed rule has been characterized by the Clinton Administration as a new $960 million initiative for people with disabilities. That figure refers to the additional federal costs that could be incurred over ten years if states decide to use this flexibility.

Another Medicaid regulation of importance to individuals with mental retardation and other disabilities and their families relates to Medicaid managed care. HCFA published its proposed rule on Medicaid managed care in 1998 and comments on that proposed rule were due by Nov. 30, 1998. Unfortunately, the final rule has still not been published although people with disabilities and other Medicaid beneficiaries continue to be placed in Medicaid managed care programs. The Arc and other national consumer organizations have written a letter to the Health Care Financing Administration urging that the final rule be published before the change in administrations. In addition, the so-called Medicaid “special needs” study, which was mandated in the 1997 Balanced Budget Act, is supposed to be published simultaneously with the managed care regulations. Staff of The Arc served for several years on working groups related to this special needs study and although the result of these working groups is more of a report than a study, it is a step in the right direction and could provide important additional information on if and how Medicaid managed care could best meet the needs of individuals with disabilities. Unfortunately, this report – like the Medicaid managed care regulations – remains stuck in the HCFA bureaucracy.

2000 Poverty Guidelines for the 48 Contiguous States and the District of Columbia

Size of Family Unit

Poverty Guideline

1

$ 8,350

2

$11,250

3

$14,150

4

$17,050

5

$19,950

6

$22,850

7

$25,750

8

$28,650

President Signs Oath Waiver Into Law

On November 6, 2000, President Clinton signed into law a bill allowing the Attorney General to waive the oath of allegiance for naturalization of certain people with disabilities. People eligible are those who cannot understand or communicate an understanding of the oath of allegiance required for citizenship.

Enactment of this legislation is expected to resolve many serious family situations where an individual with mental retardation or other impairment was unable to naturalize with their family members. While waivers of the tests for English language, civics and history had been available to people with disabilities for many years, the naturalization process still required that a person take a “meaningful” oath of allegiance to the United States. Many people were deemed unable to take that meaningful oath since it was determined that they could not understand the oath itself (or even a simplified version).

The Associated Press reported that, on November 21, Vijai Rijan became the first person to use the new oath waiver. Ms. Rajan, a 25-year old woman from India, has severe disabilities including mental retardation. Her father spent years pressing for a change and was quoted as saying, “We were afraid she would be left stateless if anything happens to us. Now she will be treated the same as the rest of the family.”

Families and members of The Arc across the country expressed similar concerns about their sons and daughters to their Members of Congress throughout the last several years. Enactment of the waiver bill was the successful result of real personal stories and family-based advocacy.


The Arc Testifies on Work Incentives Implementation

The Ticket to Work and Work Incentives Improvement Act (TWWIIA) Advisory Panel met for three days in Washington, D.C. the week of November 13. This panel advises the SSA Commissioner, the President and Congress on TWWIIA implementation. The Arc participated all three days.

Marty Ford, Director of Legal Advocacy, testified on four topics at the meeting, including: who gets a ticket; qualifications of employment networks; design of outcome and milestone payment methods; and TWWIA implementation.

Earlier, she had testified on the role of the Protection and Advocacy Systems in representing beneficiaries and resolving disputes. Testimony was submitted on the basis of the issues expected to arise in the soon-to-be-published proposed regulations.

Advocates are anxiously awaiting the publication of proposed regulations for the Ticket to Work program. While there are expected to be some disputed issues embodied in the proposed regs, the disability community is anxious for the process to begin so that the public may submit comments on the proposed rules. Delay in the proposed regulations means that the program cannot meet its first implementation deadline of December 17, 2000 for beginning the phase-in of the program. The proposed regulations are expected to call for a 60-day comment period.

The next quarterly meeting of the Panel takes place on January 9 and 10. Other meetings of the full Panel and smaller working groups are held by teleconference. The Arc staff participate in or observe as many of the scheduled meetings as possible.


President Signs into Law a Bill to Help
Locate Missing Adults

On November 9, President Clinton signed into law P.L. 106-468, legislation to authorize the Justice Department to provide grants to organizations to assist families in locating missing adults.

The grants could be used to maintain national databases for tracking missing adults endangered due to age, diminished mental capacity, or the circumstances of the disappearance, when foul play is suspected or the circumstances are unknown. The funds could also be used to notify the public and establish a national clearinghouse for missing adults.

The new law's definition of "diminished mental capacity" includes people with mental retardation. The new program is modeled after the current Center for Missing and Exploited Children and will include new informational resources and referrals for families of missing adults.

Also known as "Kristen's Act," P.L. 106-468 was sponsored by Rep. Sue Myrick (R-NC) in response to the concerns of families who have struggled to find missing relatives. As with the mental health courts bill (see article, p. 5), this new federal missing adults clearinghouse system will not be operational until Congress appropriates necessary funds.


United States Court of Appeals Affirms
Fair Housing Rights

On Nov. 20, the U.S. Court of Appeals for the Fifth Circuit affirmed the trial court’s decision in the case of Groome Resources Ltd. v. Parish of Jefferson, a Louisiana fair housing case. In doing so, the Court of Appeals upheld the constitutionality of the Fair Housing Amendments Act and the applicability of the reasonable accommodation provisions of the Act to state and local governments. The Chief Judge for the Court of Appeals wrote “we join three circuits in concluding that Congress acted under its Commerce Clause power in enacting the FHAA…”

In February, The Arc of the United States joined in an amicus (friend of the court) brief in the Groome case because the case raised important questions involving the constitutionality of the Fair Housing Act and the ability of Congress to impose the reasonable accommodation provisions of the Act on state and local governments. The decision in this case would have an impact on the ability of people to live in the community in all the states in the Fifth Circuit.

In this case, Groome Resources, Ltd., a for-profit provider of group homes, proposed a five-person group home for people with Alzheimer’s disease in Jefferson Parish, Louisiana. According to the law, “by-right” zoning (meaning the entity has the right to do this) would allow for four unrelated people to live together. Groome, Ltd. requested a reasonable accommodation to have five residents. The city council took a long time to approve this request because of strong neighborhood opposition. As Groome, Ltd. was about to lose its option on the house, it sued for declaratory and injunctive relief, which was granted by the U.S. District Court for the Eastern Division of Louisiana. Initially Jefferson Parish said it would accept the court’s decision but then changed its mind due to increased neighborhood opposition. Jefferson Parish then filed an appeal to the U.S. Court of Appeals.

The neighbors involved with this case are the same neighbors who convinced Rep. Vinner (R-La.) to introduce the so-called Fair Housing Amendments Act of 1999, which would have gutted a number of important fair housing protections for people with disabilities. Fortunately, this bill saw no legislative action during the 106th Congress.


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Discover IDEA CD 2000. Families and Advocates Partnership for Education (FAPE) has made a compact disc available with information on policy and practices related to the Individuals with Disabilities Education Act. The contents of the CD include the entire statute (P.L. 105-17); the final regulations; the analysis of comments from the Federal Register; topical briefs on critical issues; over 400 presentation slides; and over 50 policy and practice publications. To order the CD, send $10.70 (includes shipping) to FAPE PACER Center, 8161 Normandale Blvd., Bloomington, MN 55437 or call 1-888-248-0822.

IDEA Partnerships sponsors an IDEA Practices web site: http://www.ideapractices.org/. This site is designed to help families, teachers and advocates interested in improving educational results for students with disabilities. Visitors can also sign up to receive a monthly e-mail newsletter with information and resources about IDEA implementation. The IDEA Partnerships are four national projects funded by the U.S. Department of Education's Office of Special Education and Rehabilitative Services to deliver a common message about the 1997 reauthorization of the Individuals with Disabilities Education Act.

Opening Doors. The next issue of Opening Doors – the newsletter – will be out in late December. The topic is “The Olmstead Decision and Housing: Opportunity Knocks.” Each state and local chapter of The Arc should receive copies of all Opening Doors newsletters in the mail and every copy is also available on the Opening Doors web page at www.c-c-d.org/doors/html.

Link to past issues of Government Report


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