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Federal Document Clearing House
Congressional Testimony
February 5, 2002 Tuesday
SECTION: CAPITOL HILL HEARING TESTIMONY
LENGTH: 907 words
COMMITTEE:
SENATE JUDICIARY
HEADLINE: SCIENTIFIC
IMPACT ON COLONING BAN
TESTIMONY-BY: KRIS GULDEN
AFFILIATION: COALITION FOR THE ADVANCEMENT OF MEDICAL
RESEARCH
BODY: STATEMENT FOR KRIS GULDEN On Behalf
of the COALITION FOR THE ADVANCEMENT OF MEDICAL RESEARCH
Before the
SENATE JUDICIARY COMMITTEE
February 5, 2002
Good morning Senator
Feinstein and Members of the Committee. Thank you for the opportunity to testify
t oday on the value of somatic cell nuclear transfer (SCNT), commonly referred
to as therapeutic cloning. My name is Kris Gulden, and I am here on behalf of
the Coalition for the Advancement of Medical Research (CAMR). The Coalition is
an organization comprised of universities, scientific and academic societies,
patient's organizations, and other entities that are devoted to supporting stem
cell research. In addition, I realize that today I am the voice of the millions
of Americans living with MS, spinal cord injuries, ALS, Parkinson's Disease, and
many other illnesses that may benefit from therapeutic cloning. I, along with
the Coalition for the Advancement of Medical Research, support efforts to
prohibit human reproductive cloning. However, it is imperative that we protect
important areas of medical research that offer hope to millions of Americans. As
a person living with paralysis caused by a spinal cord injury, I know how
urgently a cure is needed. I do not expect a cure tomorrow, or even next year.
And I do not intend to overstate the promise of the research. But how can you
overstate hope?
On May 26, 1998, I set out on a bicycle ride that would
change my life. When I began, I was a healthy, 31 year old-triathlete. I was
employed as a police officer in Alexandria, Virginia. I never finished that
ride; it was interrupted when I was struck from behind by a motor vehicle. In
addition to a traumatic brain injury and a laundry list of broken bones, I
sustained a spinal cord injury at the T4 level. The doctors told me that I had
about a 20% chance of ever walking again. My friends and family had to
incorporate the word "paraplegia" into their vocabularies. In an instant, my
future was changed from adrenaline and thrill-seeking to wheelchairs and hand
controls.
Six weeks after my accident, I discovered that I could move my
legs. And in that instant, I discovered hope. I knew that if it were only a
matter of strengthening my leg muscles, I would in fact walk again. And within
three months, I was walking with a rolling walker.
In the summer of 1999
I went to the University of Miami to go through EMG biofeedback training. This
proved to be an exciting therapy that gave me even more optimism that I would
one day walk again. However, a rare complication of a spinal cord injury - a
disease called syringomyelia - has caused me to lose considerable function. I
have not, though, lost hope. I have gone back to Miami for additional sessions
of biofeedback, and I remain committed to the idea of walking again.
Additionally, the potential for new therapies like cloning gives hope to so many
people.
I understand that the word "cloning" has caused many individuals
to imagine the worst possible abuses. But allow me to make a critical
distinction between the use of cloning technology to create a baby -
reproductive cloning - and the therapeutic cloning techniques central to the
production of breakthrough medicines, diagnostics, and potentially vaccines to
treat diseases like Parkinson's, Alzheimer's, diabetes, heart disease, various
cancers, and even paralysis resulting from spinal cord injury. Therapeutic
cloning cannot produce a whole human being. This work should be allowed to move
forward.
Somatic cell nuclear transfer may prove to be a vital tool in
allowing scientists to fully develop the promise of stem cell research. Somatic
cell nuclear transfer involves the use of a donor's unfertilized egg and a
patient's own cells. The research could allow a patient's own genetic material
to be used to develop stem cell therapies specifically tailored to that
individual's medical condition, thus not triggering an immune rejection
response. In other words, using somatic cell nuclear transfer could repair
patients with their own cells.
Given the scientific potential in this
area, we strongly oppose any legislative action that would ban research related
to therapeutic cloning. This would include criminalizing the research or the
researchers, and prohibiting the importation of therapies derived from somatic
cell nuclear transfer in other countries.
Ms. Chairperson, it is likely
that we will continue to be confronted with scientific advances that pose
difficult social and ethical questions. The present momentum in biomedical
research, and the profound implications of what we are learning, will inevitably
raise public concerns. Yet an across-the-board ban on
human
cloning will dash the hopes of many Americans living lives that, like
mine, are so radically, functionally, and emotionally different than what they
once were.
In my dreams, I still walk. I run, I play basketball, and I
wear the uniform of the Alexandria Police Department. When the sun rises each
morning, it brings reality with it. I rise to the sight of a wheelchair, yet I
rise with the hope that maybe this will be the morning I can move my legs.
On behalf of the Coalition for the Advancement of Medical Research, the
countless Americans who stand to benefit from therapeutic cloning, and the
family members and friends who love them, I again thank the Committee for its
deliberations and for the opportunity to speak to this issue.
LOAD-DATE: February 6, 2002