OBOS 2001 Year-end
Newsletter: Highlights of
Advocacy and Activism
by Judy Norsigian
During the past year, we have been
involved in several new, challenging coalition efforts. Also, as
usual, we spoke at numerous colleges, conferences, and meetings and
continue to participate on boards and advisory committees dealing
with issues from tobacco to contraceptive research to safe
motherhood to genetics to participation in human clinical trials. We
appeared on television, radio and in print several dozen
times.
Over the past year, interns Molly Bargar,
Alicia Whittington, Angela Killilea, Jessica Rooney, Jin In, and
Bernadette Brown made invaluable contributions. They helped with
everything from our involvement in the Prevention First coalition
and follow-up to our educational work with members of Congress on
the stem cell/ cloning debates, book distribution, and conducting
workshops for teen writers at Teen Voices magazine.
PREVENTION FIRST, A Coalition of
Independent Health Organizations
A new coalition with six other women’s
and consumer health groups,1 Prevention First’s goal is
to publicize and gain national support for public health
initiatives. We ground our efforts in the so-called Precautionary
Principle, a science-based approach to setting public policies that
are guided by the philosophy of “First, Do No Harm,” and we have no
financial ties to the pharmaceutical industry. Initially, we are
working to counteract ill effects of direct-to-consumer advertising
(“DTCA”) of prescription drugs, especially where the ads are false
and misleading. Our first article about this subject, published in
the April issue of Sojourner, now appears at our website as well as
in Spanish in Revista Mujer Salud, the magazine of the Latin
American and Caribbean Women’s Health Network.
This coalition has begun with a focus on
the advertising of tamoxifen, the first anticancer drug
promoted for healthy people. We are also challenging the misleading
ads for Sarafem (Prozac repackaged for the ill-defined
indication of “Premenstrual Dysphoric Disorder" -
PMDD).
Aware that environmental links to disease
are innumerable, unavoidable, and hard to trace, our coalition seeks
to change the public’s perception of “pills for prevention” as the
first line solution to many health problems. Rather, we stress a
prevention approach underscoring the critical role of unpolluted
air, clean water and safe food.
Stem Cell Research, Cloning, and
related issues
Working with colleagues at the Council
for Responsible Genetics (CRG) and the Center for Genetics and
Society, we developed a position statement on cloning that has been
signed by over 100 individuals. The statement was prepared in part
because of the immense confusion around questions of embryo cloning
for research purposes and the larger debate around embryonic stem
cell research, the latter mired in the abortion controversy. Our
statement makes it clear that a pro-choice advocate can support most
stem cell research, yet oppose embryo cloning for research purposes,
especially before an effective universal ban on human cloning has
been established.
We were invited to present at several
educational briefings for Congressional staffers as well as at
Congressional hearings dealing with cloning legislation. Dr. Stuart
Newman, a CRG board member, also testified at these same hearings
and subsequently co-authored an op ed piece on this subject in the
Boston Globe along with Judy Norsigian. This past month, we
joined other women’s groups to protest ethicist John Robertson’s
recommendations to allow for sex selection via the use of
pre-implantation genetic diagnosis. (Developers of this technique
originally declared that it would be used only for the detection of
serious medical problems.)
Other Highlights of BWHBC Advocacy and
Activism in 2001
- Dr. Sathyamala, a longtime friend and
colleague from India , visited us in Boston while presenting at
Harvard University and subsequently joined us at our exhibit booth
at the American Public Health Association, where we featured her
new book, An Epidemiological Review of the Injectable
Contraceptive, Depo- Provera. Now available in the United States
through our office, this book offers a critical review of all the
literature on this injectable contraceptive.
- Princess Aisha Bint Al Hussein of
Jordan invited us to the World Bank for a personal consultation
about her ideas for promoting awareness about women’s health
issues in her country, specifically a women’s health center
proposal that would initially serve women in the military,
including female family members of men in the
military.
- We joined 15 other women from around
the world for a meeting in Geneva to help plan for the 9th
International Women and Health Meeting, scheduled for August 2002
in Toronto, Canada.
- We co-organized a small strategy
session in San Francisco for activists and researchers interested
in women and the new genetic and reproductive
technologies.
- We organized a training session for a
group of ten Armenian educators/ administrators, visiting the U.S.
under the auspices of the Cambridge-Yerevan Sister City
Association. Topics covered: microbicides, STD prevention, and
sexuality education for both adults and teens, encouraging a more
proactive approach on these issues in their
schools.
- We continued to alert students and
policy makers to controversies surrounding quinacrine
sterilizations (almost all of which take place in other
countries), the CRACK campaign (where women in selected
communities across the country are urged to become sterilized or
use Norplant in exchange for a sum of $200), abstinence- only
sexuality education, a newly emerging and risky trend towards
greater utilization of Cesarean section without justified medical
need , and other developments that threaten women’s reproductive
and sexual well-being.
Presentations:
American Dental Association (Kansas
City), Yankee Dental Congress (Boston), Brandeis University, Planned
Parenthood League of Massachusetts Board of Overseers meeting,
National Summit on Safe Motherhood hosted by the Centers for Disease
Control (Atlanta), Champaign County Health Consumers Coalition
(Illinois), Illinois Women’s Health Coalition (Chicago), Rollins
College (Winter Park, FL), University of Florida (Gainesville),
University of California at San Francisco, Nova Scotia women’s
health conference, Festival of the Book (Charlottesville, VA),
University of Massachusetts (Boston), Hampshire College
(Amherst)
Meetings:
American Public Health Association
(Atlanta), Strategic Advisory Board of the Consortium for Industrial
Collaboration in Contraceptive Research, Technical Advisory
Committee of CONRAD (Contraceptive Research and Development
Program), Women, Girls and Tobacco Advisory Committee
(Massachusetts), Technical Advisory Committee of Family Health
International (North Carolina).
1 Founding members are:
the Boston Women’s Health Book Collective ( Boston ), Breast Cancer
Action ( San Francisco ), the Center for Medical Consumers ( New
York ), DES Action ( Oakland ), the Massachusetts Breast Cancer
Coalition, the National Women’s Health Network ( Washington , D.C.
), the Women’s Community Cancer Project ( Cambridge , MA ), and the
Working Group on Women and Health Protection ( Canada ), represented
by Breast Cancer Action Montreal .
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listing of articles from the 2001 Year-End Newsletter.
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