My name is Maya Fielder and I am 9 years old. I live in Palo
Alto, California and I am in the 4th grade at Escondido School.
When I was a little baby my Mom found out she had Parkinson's
Disease. I was with my Mom, but I don't really remember when the
doctor told her she had a bad disease that gets worse and worse and
doesn't have a cure. I know that now there are lots of things I
can't do with my Mom and sometimes feel like I have to take care her
instead of her taking care of me.
I learned that Parkinson's Disease is when your brain doesn't
produce enough dopamine. Dopamine is important because it tells your
body how to move. My Mom's body tremors and she can't write things
down or if she does no on can read it, not even her. She gets
disabled to walk so she rides my scooter around the house (I'm not
allowed to ride in the house though). And sometimes she can't even
walk until her medicine starts working so my Dad and I get things
for her.
She takes tons of pills every day but the medicine or the disease
causes more problems for her so my Mom tries new medicines and
different things a lot to try to get better.
Our whole family works hard to help find a cure for Parkinson's.
My mom talks about Parkinson's to the newspapers or on the news
whenever she can and sometimes my name or picture is shown too! We
had a charity art show at our house and Uncle Dan's art raised a lot
of money. I even sold a painting and all the money went to
Parkinson's research. My mom said that if researchers got enough
money from Congress and from regular people that scientists could
find a cure in 5 or 10 years. That would be good because I won't be
a grown-up yet and my Mom will get better and we could go iceskating
together.
But now we have a big problem. I heard President Bush say that
all cloning research has to stop. My Mom was really upset because
she said the President and some people in Congress want to stop
researchers from finding a cure for Parkinson's and lots of other
diseases that make millions of people sick. I don't get it.
One part of the Pledge of Allegiance says "Liberty and Justice
for all". I don't think the government is giving us much liberty or
justice--at all!
People are scared of the kind of cloning that would make new
people (reproductive cloning). But what's so scary about finding a
cure for my Mom? That kind of cloning is called therapeutic cloning
and doesn't make people or kittens or anything like that--it would
just help my Mom's brain work again like it is supposed to.
I think that the people who make the laws should make rules so
scientists won't do bad things with research. But can't they still
be allowed to do the good research? My mom said the Brownback bill
that is being voted on Congress soon wouldn't allow scientists to do
the good kind of research that would help her. She also said that
this law wants to put people like her in jail if they try to get
cured. That's just dumb! My Mom isn't doing anything wrong by just
trying to get well.
I thought I might want to be a scientist when I grow up but I
don't think so any more. I just want to find a cure for my Mom. I
guess I'll become the President of the United States so that I can
make good laws that help people and cure diseases. I'll let
scientists do their work and make all kinds of new discoveries.
I know that this isn't the most important thing for everyone. But
I think that if someone in your family was sick and you were
worried, that you would do everything you could to help them get
better. You wouldn't make laws so that a cure would not be found and
you wouldn't put them in jail.
Please help find a cure for my Mom and everyone else that needs
one instead of making it harder. I'm doing as much as I can do to
help my Mom and other people too (when I'm not in school or doing
sports or playing violin, but Mommy says that helps her too). This
is really important to a lot of people.
Thank you.
Maya Fielder