Contact: Julie
Kimbrough, 646-734-6091
Maggie Goldberg, 973-379-2690, ext.115
A Moratorium on Therapeutic Cloning Equals Ban on
Life-Saving Medical Research
Patient Groups Voice Their
Opposition
Washington, DC -- June 13, 2002 -- The Coalition
for the Advancement of Medical Research (CAMR) reacted today to the
idea of a potential moratorium on therapeutic cloning (also known as
somatic cell nuclear transfer). The Coalition, which opposes a ban
on therapeutic cloning, has been leading the charge to urge Senators
to support this area of life-saving medical research.
"A moratorium on therapeutic cloning is a thinly veiled attempt
at banning important research outright. Supporters of a moratorium
know how difficult it is to lift one -- that is why they are
proposing it," said Michael Manganiello, President of CAMR. "A
moratorium would mean that important medical breakthroughs are put
on hold. People suffering from life-threatening diseases and
conditions are told they will just have to wait for their cures."
"A moratorium sends a strong signal to the scientific community
that potential medical breakthroughs from somatic cell nuclear
transfer should not be pursued. Further, it stigmatizes this
research as morally suspect. Researchers will be unwilling to pursue
this important area of science because of the stigma as well as the
uncertainty about whether it will ever become an accepted form of
research," said Larry Goldstein, PhD., Professor of Cellular and
Molecular Medicine at UCSD.
"Those Senators considering a multi-year moratorium need only
look at my daughter, who was recently diagnosed with Rett Syndrome,
to understand why people can't afford to wait. Shutting down
research today and restarting it when a moratorium is lifted will
hold back science much longer than the length of the ban, meanwhile
lives of real people, like my daughter, hang in the balance," said
Elizabeth Howard, mother of Allison.
"The rationale for a moratorium is to further study the potential
of this research, but the National Academy of Sciences has already
done that and issued a recent report validating therapeutic cloning.
If U.S. scientists are not allowed to pursue promising research,
they will only go outside the U.S. and American patients won't have
first access to new drugs and treatments they may develop," added
Manganiello.
The Coalition for the Advancement of Medical Research (CAMR),
is comprised of nationally-recognized patient organizations,
universities, scientific societies, foundations, and individuals
with life-threatening illnesses and disorders, advocating for the
advancement of breakthrough research and technologies in
regenerative medicine - including stem cell research and somatic
cell nuclear transfer - in order to cure disease and alleviate
suffering. For more information on CAMR, visit the website:
www.camradvocacy.org.
EDITORS NOTE: Patients are available for interviews, please call
Julie Kimbrough, 646-734-6091 or Maggie Goldberg, 973-379-2690, ext.
115.