Jesse Kornbluth:
Christopher Reeve is with us tonight, an actor who has become
something more -- an example of what is possible when you
really, REALLY try. Welcome, Christopher.
Christopher
Reeve: That is great!
Jesse Kornbluth:
For those who have missed all the articles and might not have
seen last night's ABC documentary, you have some terrific
news. Would you take us briefly through it?
Christopher Reeve:
Yes. Beginning in September of 2000, I discovered that I was
able to move fingers on my left hand and decided to put other
things aside and focus on exercising. The reason I did that
was because there was no other explanation for why my fingers
suddenly moved five years after my injuries but that I had
been exercising since October of 1995, when I was in rehab.
Perhaps the exercise had reawakened pathways of nerves that
were still intact, because since then, I have developed the
ability to move almost all the joints across my body, although
some movement, such as my legs or arms, have to be done lying
down or in a pool.
Jesse Kornbluth:
Let me ask a few quick questions, then turn you over to our
members. You've worked amazingly hard. How many hours a day
did you exercise?
Christopher Reeve:
Anywhere from two to four and a half hours a day, seven days a
week, unless I have other commitments I had to
make.
Jesse Kornbluth:
Skeptics will say, "Yeah, but he has resources. He has a staff
and therapists. Nobody with less help could make this
progress." What do you respond?
Christopher
Reeve: Beside my desire to improve my overall health and
gain some recovery, my main desire is to prove that exercise
and physical therapy can cause recovery and better health for
others. It is my hope that insurance companies will understand
that they will profit from providing patients the kind of
staff and therapy that I had. At the very least, a person with
my level of injuries will not spend so much time in the
hospital. This will save the insurance companies money.
Persons with lower-level injuries will recover the ability to
walk and no longer need insurance. This has already been
proven in a number of facilities that train paraplegics how to
walk by using a treadmill. The most important point is that we
can have a win/win situation where insurance companies will
save money and patients will improve and
recover.
Jesse Kornbluth:
OK, to our members.
Code3tara1: I saw the
TV show and am so inspired by you. Please don’t give up. You
are a strong person. Have they found any way to increase your
diaphragm muscles? I am praying that you will be able to
stand, breathe and live without assistance one day.
Christopher
Reeve: Thank you for your support. I am pleased to tell
you that after I failed the diaphragm test, I changed my
regimen of breathing exercise, and in the month since the film
was completed, I have shown that my diaphragm is working and
gaining strength all the time.
Allstarme409: What was
going through your mind the moment you got feeling back in
your hand?
Christopher
Reeve: Before the feeling returned to my hand, I had to
be content to look at someone touching me. To have sensation
back has brought great joy.
Jesse Kornbluth:
We have lots of messages from people who want to express their
support for Christopher. Well, there IS something you can do.
It won't cost YOU a penny. It WILL give Christopher’s cause $1
for research. When this chat is over, please go to AOL
Keyword: Christopher Reeve and click on the “Happy Birthday”
message. Every time someone sends a birthday greeting, a rich
friend of Christopher's donates $1. So this is a very cool way
to show your support. Christopher, where will the money
go?
Christopher
Reeve: The money we receive goes to fund the best
cutting-edge research in the world and to help the quality of
life for people living with disabilities.
Ataya0080: Is there a
possibility that ordinary people like me could donate our
unfertilized eggs for stem cell research?
Christopher
Reeve: At the moment, you are only allowed to donate
eggs for fertility research, not for stem cell research. Thank
you for that kind thought. What is most important is to
understand that the best hope for people with diseases ranging
from Alzheimer’s to Parkinson’s to diabetes to cancer to ALS,
as well as spinal injuries, is therapeutic cloning. Do not be
scared of that word “cloning.” Cloning is not meant to
reproduce a human being. That kind of cloning should be banned
by our government. However, therapeutic cloning takes an
unfertilized egg when it is only one or two days old. The
nucleus is removed, and the DNA of the patient is put inside,
and stem cells that match the patient genetically are created
in the laboratory. This technology does not destroy life, but
it has the potential to save millions of lives. Please learn
more about the issue, if you are confused, and tell your
representatives to allow the government to fund this critical
research.
Jesse Kornbluth:
Is there anything we can do to change the president's mind
about stem cell research?
Christopher
Reeve: I don't think it will be possible to change the
president's mind in that sense. However, a grassroots movement
of support not only for stem cell research, but every kind of
responsible, scientific inquiry can make a huge difference.
That was the case with AIDS in the 1980s, when the government
did not fund any research. But because of pressure from the
public, today the government spends $1.8 billion on AIDS
research, and the virus is largely under control in this
country.
Brad270cal: Do you
think in the near future you will be able to stand and walk,
and when do you think that day will come?
Christopher
Reeve: I think that my recovery and the health and
well-being of ... 54 million Americans living with
disabilities will be determined by politics. The U.S. should
be leading the world in the best of research, but because of
political controversy over the last four years, progress has
been unreasonably delayed. In the meantime, many other
countries like England, Singapore, Sweden and Israel are
progressing well, because they understand the importance of
letting the best research go forward. I hope we will reclaim
our position of leadership, but it will take public demand to
make that happen.
Jesse Kornbluth:
Several members ask, what is your biggest fear?
Christopher
Reeve: My biggest fear is that our society will become
so preoccupied with other issues that millions of people who
are suffering will be left behind. As Franklin Roosevelt said
in 1940, "We cannot be a strong nation unless we are a healthy
nation." Those words are still true today.
Amy41971: Hi, I have a
daughter who is 11 and has almost the exact same injury as
you. She was paralyzed nine years ago. What can I do to get
her more aggressive help? Doctors are content with her as she
is. We are not.
Christopher
Reeve: Unfortunately, sometimes doctors are content to
set limits on a patient's expectations. My advice to everyone
is never to accept absolutes. There are many centers around
the country that offer proactive rehabilitation. That can help
even people who have not exercised for a very long time. If
you go to http://www.paralysis.org/,
you will connect with the Paralysis Resource Center. And if
they have not done so, they will soon have a listing of where
they are available.
Jesse Kornbluth:
I keep looking at the title of your new book, ‘Nothing Is
Impossible,’ and what completely stuns me is: You mean it
LITERALLY.
Christopher
Reeve: Well, I don't expect pigs to fly. I do believe
that there are resources inside all of us that we may know
very little about. All it takes is curiosity and determination
to see what we have inside and how we can benefit from
learning more.
Jesse Kornbluth:
I don't know about you all out there, but I notice I've been
sitting straighter and breathing deeper and feeling more alert
as we've talked to Christopher tonight. And I know I'm going
to AOL Keyword: Christopher Reeve to wish him a happy 50th.
That stampede you hear, Christopher, is AOL members rushing to
that site. Happy birthday -- keep going!
Christopher
Reeve: To everybody online with us tonight and to all of
our friends and loved ones, Dana and I want to express our
deepest gratitude. We have only been able to come this far
because so many people care about our family. Not only am I
grateful for your generosity, but I promise you that I will do
everything I can to try to return it. Thanks again. With love,
Christopher.
Jesse Kornbluth:
Thanks. Good night, all.
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